Below is a listing of Web sites that Barb Blake-Krebs and others compiled
for the appendix to a book on young onset PD, Behind the Masks.
There are at least a few hundred web sites about PD. The following sites
have been recommended by members of the Parkinsn list for being
informative, accurate and up-to-date. Each category is in alphabetical
order.
Be forewarned... you must never assume that information obtained from
the web is necessarily the best information available (or even valid).
Remember,
no one sets content rules on the Internet. That said, there is an education
awaiting you!
Please Be Advised: Medical information should always be reviewed with
your physician or attending professional.
Send corrections or updates of this list to: parkinsons@weeksweb.com
Newly Diagnosed With PD
The Newly DiagnosedSupport Groups Database
from the web site of SPRING,
(Special Parkinson's Research Interest Group):
official Special Interest Group for Medical Research,
Parkinson's Disease Society of the UK
http://spring.parkinsons.org.uk/spnewly.htmThe Newly Diagnosed
Helpful facts and information from the Parkinson Foundation of Canada.
http://www.parkinson.ca/pd/nd.html
U.S., Canadian and Australian
created by list member Arthur Hirsch.
http://www.fortunecity.com/meltingpot/farley/817/asupport.html
Subject Directories and Indexes to other PD
Web sites - some good places to start:
Index to Parkinson's Disease Information on the InternetYoung Onset PD Sites
one of the most complete and well indexed
compiled by Phil Tompkins, PD list member.
http://www.pdindex.orgParkinsonian Links
created and maintained by Art Hirsch, PD list member
http://www.fortunecity.com/meltingpot/farley/817/blynx.htmlParkinson's Web
site may be unavailable
Massachusetts General Hospital
http://pdweb.mgh.harvard.edu/main.html
Ask Noah: Parkinson's Disease
site may be unavailable
http://www.noah.cuny.edu/neuro/parkin.html
Arlette Johnson APDA
Young Parkinson's Information & Referral Center
http://members.aol.com/apdaypd/young/index.htmlYoung Onset Parkinson's Disease
An online article by Emma Bennion, list member
http://www.parkinsonsdisease.com/lwp/LWP13.HTM#Young onsetYoung Parkinson's Handbook (online version)
http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/YOPD_Handbook/YOPD_TOC.html#TOC
see also:
http://pdweb.mgh.harvard.edu/main.html"The Young Parkinson's patient"
an article by Dr. E. Montgomery
http://neuro-chief-e.mgh.harvard.edu/parkinsonsweb/Main/Support/youngpark.html
PD Organizations:
All of these contain lots of good information,
online publications and links to other PD web sites.American Parkinson Association
http://www.apdaparkinson.comEuropean Parkinson's Disease Association
http://www.shef.ac.uk/~epda/home.htmlNational Parkinson's Foundation (NPF):
http://www.parkinson.org/Parkinson Disease Foundation
http://www.pdf.org/Parkinson's Action Network (PAN)
http://parkinsonsaction.org/Parkinson's Association of Western Australia
http://www.quartec.com.au/parkinsons/Parkinson's Disease Society of the United Kingdom
http://www.shef.ac.uk/misc/groups/epda/parkuk.htmParkinson's Foundation of Canada
http://www.parkinson.ca/Parkinson's Unity Walk
http://www.parkinsonwalk.orgWe MOVE
World wide Education and Awareness for Movement Disorders
http://www.wemove.org/World Parkinson's Disease Foundation
http://www.wpda.org/
Other PWP recommended web sites
AwakeningsAdditional Links
Current news, treatments, research, links to PD
organizations and support groups from around the world.
http://www.parkinsonsdisease.com/
Living with Parkinson's
http://www.parkinsonsdisease.com/lwp/lwp.htmCurrent Parkinsn's List E-mail messages:
Web site maintained by list member John Cottingham.
View the 50 most recent PD list messages
http://www.parkinsons-information-exchange-network-online.com/parkmail/maillist.htmlParkinsn List Drug database
Maintained by John Cottingham
Information on PD drugs and interactions with other medications.
http://www.parkinsons-information-exchange-network-online.com/drugdb/drugdb.htmlParkinsn Archive Treasures
Maintained by John Cottingham
http://www.parkinsons-information-exchange-network-online.com/archive/sitemap/index.htmlP-I-E-N-O
Maintained by John Cottingham
http://www.parkinsons-information-exchange-network-online.com/Diagnostic criteria for PD
from the Archives of Neurology
http://archneur.ama-assn.org/issues/v56n1/rfull/nsa7701.htmlJames: a site about Parkinson's
List member Simon Cole's website
the international online PD community, plus other informative links.
http://james.parkinsons.org.uk/The Parkinson's community on the Internet
http://james.parkinsons.org.uk/community.htmNational Institute of Neurological Disorders and Stroke, NIH
http://ninds.nih.gov/health_and_medical/disorders/parkinsons_disease.htmThe NIH Parkinson's Research
http://www.ninds.nih.gov/parkinsonsweb/index.htmNPF Online Publications
Includes information on nutrition, exercise,
speech, medications and much more.
http://www.parkinson.org/onlinpub.htmParkinson's Facts
Basic information from the National Parkinson's Foundation
http://www.parkinson.org/eduindex.htmParkinson's Disease information
The Parkinson's Institute
http://www.parkinsonsinstitute.org/parkinsons.htmlParkinson's News From the Front Lines
compiled by Paul Mote
contains news, writings, etc. by PWP
http://www.coyotewebart.com/parkinsons_news/PD Rating Scales
Progression of the disease by stages
http://neurosurgery.mgh.harvard.edu/pdstages.htmThe PieNET
The parkinson's information and exchange network
compiled and maintained by list member Janet Paterson
how to join, what PIEN is all about, meet some of it's members.
http://www.geocities.com/janet313/pienet/index.html
Parkinson's Disease - Doctor's Guide to the Internet
Latest News - Links
http://www.pslgroup.com/PARKINSON.HTMFAQs About Parkinson's Disease
You will need to scroll down to the FAQ portion
http://www.wemove.org/par_faq.htmlThe Texas Health Resources Series on Parkinson's
Including FAQ's
http://www.thr.org/parkinson/Mednets.org
Mednets explains Parkinson's in a Question / Answer format...
http://www.mednets.org/parkinsons.htmParkinson's Disease
A paper written for directed independent study (1994)
http://alumni.engin.umich.edu/~jxm/parkinson.htmlMayfield Clinic Patient Information - FAQ
http://www.mayfieldclinic.com/PE-PD.htmParkinson's Information Web Site
http://www.parkinsonsinfo.com/
http://www.parkinsonsinfo.com/faq/The Infinite Mind: Parkinson's Disease
http://www.lcmedia.com/mind995.htmWhat are "Movement Disorders"?
http://www.parkinsonsinstitute.org/movement.htmlNeuroland - Movement Disorder Info Centre
http://www.neuroland.com/pt/movement.htm